dit werk kent de volgende uitvoeringen
Paperback
ISBN9789464062663
verschijningsdatum31/12/2020
verschijningsdatum31/12/2020
Personen
Cor Arie Beetsma
NUR Codes (sub)
860 Gezondheid algemeen
Leven met vitiligo
In 4 phases I wish to illustrate how one can handle the stress, ambiguity of information and the change in life’s priorities which a cancer patient will face. My approach has been to accept temporary and permanent change with a positive mindset, never to stick to trusted habits but instead adopt a new lifestyle whenever my physical state required it. I have identified 4 phases which can be initially observed sequentially. However treatments may suddenly stop working due to aggressive nature and intelligence of the Melanoma cells. When that happens, the patient maybe be thrown back to the previous phase when a new treatment need to be found, or, in the worst case, when tumours starts appearing or growing again. - Phase 1 is the traumatic experience of being diagnosed. - Phase 2 covers the period where we studied various treatment options. - Phase 3 is the realisation it is permanent, but there will be a cure. - Phase 4 starts at the moment when I had enough of simply surviving and I wanted to get on my life and enjoy it again. One can think of it this way: during recovery, the puzzle pieces of your old life gradually start falling back into place, except with different priorities and with less space left over to enjoy life. As you hover over the puzzle of your new life as it is taking shape, you come to realise that the image has changed and so does it’s shape and size. At times it appears like it’s not happening to you, or its not your life you are observing. It can be so surreal at times. This is the hardest to explain to yourself and to others. When I shared this analogy in the patient support group, I realised that fellow patients immediately understand this comparison. They called it so powerful. That is why it’s so important to get in touch with fellow patients, not to compare your situation with theirs, or to find out how lucky or unlucky you are. No, it is to realise the impact cancer has on your life in order to accept its permanent.